About Me

Thank you for taking the time to visit my blog.

I am running the New York City Marathon this November to raise money for the Huntington’s Disease Society of America, and I need your help. But first, let me tell you what has brought me to this important organization.

My father had Huntington’s Disease. HD is a degenerative neurological disorder that affects a wide variety of the victim’s mental and physical capacities, damaging their ability to speak, move, and think. It is a terminal disease, causing death by slowly removing the individual’s ability to function, eventually causing death by a variety of complications such as pnuemonia, heart disease, or choking. My father spent the last two years of his life in hospice care, and in 2011 he lost his decade-long battle with HD.

HD is only transmitted genetically, and every child with a parent who has HD will have a 50% chance of also having HD. This past summer I went forward with genetic testing to reveal if I had received the disease from my father, a step that less than 5% of at-risk children are willing to undertake. Thankfully, I do not have HD, but there are others out there who are not as lucky as I am, which is why I am raising money for the Huntington’s Disease Society of America.

You can make a donation to my fundraiser by clicking on the widget to your right, or by clicking the link above. Your donation will help make a difference in the battle to someday find a cure for HD.

 

And I promise you won’t have to dump ice water on your head.

This article has 1 Comment

  1. Thanks for the promise of no ice water, Noah! I also went to college with your mom and Mark and they both made a strong impression. I learned a lot from just being around them. I work in the field of dementia now and my heart goes out to you and your mom after all you have been through as caregivers. My husband Phil had cancer for two years before he died, it is hard to get my head around a decade of caregiving. Surely it has changed you both forever in ways that will serve you well as you move forward. All the best with the run!

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