Thank you for taking the time to visit my blog.
I am running the New York City Marathon this November to raise money for the Huntington’s Disease Society of America, and I need your help. But first, let me tell you what has brought me to this important organization.
My father had Huntington’s Disease. HD is a degenerative neurological disorder that affects a wide variety of the victim’s mental and physical capacities, damaging their ability to speak, move, and think. It is a terminal disease, causing death by slowly removing the individual’s ability to function, eventually causing death by a variety of complications such as pnuemonia, heart disease, or choking. My father spent the last two years of his life in hospice care, and in 2011 he lost his decade-long battle with HD.
HD is only transmitted genetically, and every child with a parent who has HD will have a 50% chance of also having HD. This past summer I went forward with genetic testing to reveal if I had received the disease from my father, a step that less than 5% of at-risk children are willing to undertake. Thankfully, I do not have HD, but there are others out there who are not as lucky as I am, which is why I am raising money for the Huntington’s Disease Society of America.
You can make a donation to my fundraiser by clicking on the widget to your right, or by clicking the link above. Your donation will help make a difference in the battle to someday find a cure for HD.
And I promise you won’t have to dump ice water on your head.